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Frustrated to the MAX!!!

Neuropathy | Last Active: 1 hour ago | Replies (14)

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@ray666

Good morning, @mrshill

I believe we all understand you to some degree. What you're experiencing echoes what we've all experienced, and it's not just physical. I know you're sensing that, too. The inability of family and friends to understand can be just as painful, sometimes more so. I had an example of this only this morning. My partner and I are in the midst of a move. I'm unable to drive (more the result of sepsis than my neuropathy), although I've a perfectly good Jeep parked outside. My partner asked if her cousin might use my Jeep to carry some of our belongings across town. Ordinarily –– were I my former heathy self –– I would have said, "Of course! Use my Jeep." But a surprising thing happened: A possessive corner in my brain caused me to respond, "No, I'd rather not let your cousin use my Jeep." Mmm? Why did I respond that way? What possessed me? Moments later, I was able to explain to my partner –– after saying, "I'm sorry. Sure, let him use my Jeep" –– how much it hurts me not to be able to be able to help with our moving, that my disability makes me feel like a half-person. I know that's nonsensical, childish, too, but that's how it is. At least I was being honest with myself –– after a moment's reflection anyway.

You have my best wishes for recovering strength and ever-improving days, not only physically (in which we're all limited in our individual ways) but emotionally, too.

Cheers!
Ray (@ray666)

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Replies to "Good morning, @mrshill I believe we all understand you to some degree. What you're experiencing echoes..."

@ray666 you hit the nail on the head! I’m a hairdresser and would always cut my husband and son’s hair, of course I can’t do that now, and it kills me every time they go out and pay for haircuts. It’s just another neuropathy slap in the face. I appreciate your story though. It helps to know I’m not alone in this ❤️