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← Return to Help: Sudden Sensorineural Hearing Loss (SSHL) - very scary
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Help: Sudden Sensorineural Hearing Loss (SSHL) - very scary
Hearing Loss | Last Active: Mar 3 9:05am | Replies (88)Comment receiving replies
@nancyjg Thanks for sharing your story, I know I am in the beginning stages of dealing with this and I appreciate people’s feedback and learning more about alternative methods of perhaps treating this. ENT doctors still seem like there is no clear answer as to why it happens to certain people and not others.
I am researching other options and continuing my prednisone treatment.
Very much appreciated for sharing your story.
Replies to "@nancyjg Thanks for sharing your story, I know I am in the beginning stages of dealing..."
The first ENT I went to told me the SSHL is caused by a virus. When he retired, I changed providers to an ENT at Stanford who said, “Oh yeah. Virus is what we say when we have to come with something, but in reality, the cause is still a mystery most times”.
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Dr Djalilian is the ENT who is in Irvine California btw.
My name is Lesley Hirshberg Miller and my daughter had this condition. The Drs in NYC do not seem to know about or treat cochlear migraines. I have tried calling heads of department and the heads of large otolaryngology groups but not getting much help with spreading the information so people can be more informed and better diagnosed and treated.