← Return to Help: Sudden Sensorineural Hearing Loss (SSHL) - very scary

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@nancyjg

Fifty years ago I lost my hearing in my right ear. Diagnosed as Menieres. I did not try HBOT, if they even had it back then. I had had severe vertigo and lost it when I lost my hearing, so I wasn't devastated by the loss. Fast forward a decade or so and I started losing it in my left ear. I was immediately put on Prednisone. This was pre-internet, but fortunately there was an apartment I wanted to rent and I had to pretend I knew the current tenant. He and I had dinner to get to know each other; he was a chiropractor. I come from a famil y of Yale MD's and had been snobbish about chiropractors. He told me the history of chiropractics and that the first person ever treated was a deaf farmhand who got his hearing back. I was desperate. It had been years since our one meeting, but I tracked him down, reminded him of the deaf farmhand and cried, asking him if he could help me get my hearing back. He said he'd try. I felt a cold instrument tap against the back of my neck ( as if it were on a spring) and he manipulated/twisted my head. I heard a horrible crunching sound and felt some heat. I left, went to a movie to sit in the dark to cry, when partway through the movie it was as if the sound volume was cranked all the way up. I had my hearing back! I've had it happen two or three times since and each time a (different) chiropractor helped. But never as much as the first time.

This is a long story, but after 53 years of being deaf in one ear, and losing some in my good ear a few years ago, I've learned that while the science of hearing has progressed, there's really been no progress in treatment. I don't want to discourage you, but give you hope that by going non-mainstream, like to a c hiropractor, might possibly help. I'm still a snob about what doctors I see, but I'm now more open to alternative medicine.

Also, Facebook has support groups for SSSH sbd other hearing issues, with hundreds of people sharing what's worked for them. And they share their cochlear stories. Some good. Some not.

I wish you the very best. If you cannot get your hearing back, I recommend CROS hearing aids (amazing!). And there are now smart glasses with "closed captioning" by Vuzix so you can read what people are saying!! 'They're $500 and I'm getting them as soon as they're back in stock.

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Replies to "Fifty years ago I lost my hearing in my right ear. Diagnosed as Menieres. I did..."

@nancyjg Thanks for sharing your story, I know I am in the beginning stages of dealing with this and I appreciate people’s feedback and learning more about alternative methods of perhaps treating this. ENT doctors still seem like there is no clear answer as to why it happens to certain people and not others.

I am researching other options and continuing my prednisone treatment.

Very much appreciated for sharing your story.

I am trying to inform people about another cause for sudden sensorineural hearing loss with chronic tinnitus which is cochlear migraines, name deceiving because no headache just hearing loss which is triggered possibly by loud noise, stress, poor sleep, foods, etc. Have only found one Dr in Irvine California who understands and treats this. Yes multifactorial causes and approaches for treatment.