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Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (27)
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I feel very fortunate to deal with my rheumatologist and his PA. They helped me through a very difficult time when I almost lost my vision from GCA. They prescribed Actemra to help taper off prednisone more quickly, and gave me a taper plan that has worked well so far. Also they're easy to contact if I need anything. I can call or email their office, and they have an off-hours emergency number that is always staffed. They have always gotten back in touch with me quickly whenever I had any problems or questions.
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Were you able to regain your vision? I am so glad you had the help available when you needed it! And that you have established a trusting relationship with your medical team. That's really a blessing.
I wonder if blindness is an outcome for everyone who has GCA? And if so, how they are dealing with it? That's another thread, but I am interested in hearing more about your experience.