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@suerte
I have Hashimoto’s and hypothyroidism. I had a large nodule on my right lobe and had it removed because it was suspicious (it ended up being benign but they did find a micro cancer).
Hashimoto’s is known to cause nodules. Did you have an ultrasound of your thyroid to check for nodules?
The way Hashimoto’s is diagnosed is not through TSH levels alone. It is diagnosed through TPO autoantibodies showing up in your bloodwork. Hypothyroidism is diagnosed through TSH (high) and T3/T4 levels.
I had “normal” TSH levels but did not feel normal. I did not feel well if my TSH went over 1.0 and the “normal” TSH range can go up to 5.0! When I had my lobectomy, my TSH started to go over 2, then 3 and then 4 before my levothyroxine was increased from 88 mcg to 100 mcg. I felt like a zombie and could not get out of bed because I was so weak and tired. What is “normal” for some is not normal for all. It is better to see historical TSH levels where you felt better and see what levels show when you started to feel lousy.
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Hi! This sounds exactly like what I’ve been going through. I had a right hemithyroidectomy for a benign nodule a year ago and have been extremely sick since. I found out at the time of surgery I have Hashimotos, though I previously didnmt have symptoms. My TSH went above 8 post surgery. I went on levothyroxine for a few weeks and became very ill, then went off meds and my TSH naturally lowered over time. It’s now at 3.5 and my Hashimotos antibodies have interestingly also lowered, but I feel unwell constantly. I’m dizzy, have internal tremors, exhausted, vertigo, nausea, weak and achey. My year has been a right off with intense and terrifying symptoms with heart rate increasing out of nowhere, temp dysregulation among other things . I have been in EE 8 times, and seen multiple specialists due to so many symptoms. Did you experience any side effects from the levothyroxine? I feel that endocrinologists have no idea about treating symptoms and only defer to numbers. I have been told my symptoms are ‘unusual’ and that I am a complex and mysterious case. I feel like no doctor will be able to help me.