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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 2 days ago | Replies (892)

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@gayglenn

Hello - I have been HIV+ for close to 34 years and am undetectable. I was diagnosed with Kaposi Sarcoma in October 2021. Have been treated with Doxil intravenous and KS is currently dormant. Are there other treatments for this disease and if so are they well tolerated and effective. What is the prognosis for someone in this situation. I am currently 76 and long term survivor of HIV. Also how rare is it that someone undetectable can suddenly develop KS. I remember all my friends who died from this and pneumocystis back in late 80's and early 90's.

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Replies to "Hello - I have been HIV+ for close to 34 years and am undetectable. I was..."

Welcome, @gayglenn. You might be interested in this related discussion:
- Kaposi’s Sarcoma: Just want to talk https://connect.mayoclinic.org/discussion/kaposis-sarcoma/

I'm glad to hear that chemo has worked. Did your oncologist say that it is in remission? Do you continue with doxorubicin liposomal (Doxil) or are you on a treatment break right now?