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Had colon cancer and now CEA is rising: Scared

Colorectal Cancer | Last Active: Mar 4 11:07am | Replies (81)

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@lida55

But exactly i have this fear that ok this cea has reached to 4.6 now. 3
months later it will be 5 for example. Is it possible that it reaches from
4.6 to 90 or 60 or high numbers next time?????? Thats my fear.
Really i cant concentarte on anything even my work at office.
Ofcource maybe the answer is nobody knows.
If it reaches to those high leves again or above 5 it is likely the
recurrence???
Anyway We have to do ctscan and colonoscopy to find more things.

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Replies to "But exactly i have this fear that ok this cea has reached to 4.6 now. 3..."

Just to say I was diagnosed 4 years ago and my CEA has gone from single to double figures throughout. My highest with no cancer present was 15 it was caused by gut inflammation.
When last year the cancer managed to get to my liver in 3 places the CEA was very high. But even then the surgeon was able to remove the cancer.
The problem with this horrible illness is that it frightens people. I put my hand on my heart and say if I had your husbands low CEA I would be calmed. Those figures he has show inflammation imo not cancer. My surgeon said my cancer was slow growing and he was confident he could rid me of any reoccurrence. Your husband case sounds like mine. We are here 4 years later. I’m in the UK and keep in touch with the Mayo because I may need more advanced treatment in the future and the USA leads the way. You’re in good hands- the best hands. Best regards Maggie

I will say that I am currently stage 4 colon cancer and it is very aggressive and my CEA numbers are low. Mine show no indication of colon cancer. So CEA numbers alone cannot dictate whether or not its back. Were they elevated when you were first diagnosed is the question. My first diagnosis was stage 3c in 2023 of August. No elevated CEA for me. Did Folfox 12 rounds and observed. Snuck back in in an area we weren’t monitoring very closely within a 2 month period in Nov 2024. Still no elevated CEA numbers. They can be misleading. I would always err on the side of caution. You are your best advocates. God bless!