Recurrance of endometrial cancer to lung

Posted by fighter2025 @fighter2025, Feb 21 1:35pm

Recurrence of endometrial adnecarcenoma from 3 1/2 years ago full hysterectomy, FIGO Grade 1, Stage 1 into lungs, showing as multiple nodules. Has anyone gone through Chemo and Immunotherapy (Keyturda), achieving full remission?

What side effects (short term or long term) did you experience while on Chemo and on Immunotherapy?

Did you work while on these treatments?
What did you do to manage those side effect?
What dietary guidelines did you use, if any?
How did you manage your stress and anxiety?
What kind of support system did you have in place?

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

@fighter2025

MD Anderson is part of network but it’s in Houston, TX which would require an out of state trip. I am still 5-6 years away from retirement & need for health benefits, no choice but return to work hence will not have the time & flexibility to accommodate one week visit at MD Anderson.
Also, during my appt yesterday, option to continue on or stop the treatment was put on the table along with strong recommendation that I need help for anxiety control.

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@fighter2025 I understand. That's unfortunate that you cannot make that out-of-state trip at this point in time. Do you think you will pursue that second opinion locally so you can decide whether to continue with the current treatment or move to another option?

I think it's a reasonable assumption that most anyone diagnosed with cancer is going to be anxious even if they have not experienced anxiety in the past. Your history as you've described it with this recurrence is a huge adjustment and change in your present life. No one prepares for this.

I'm tagging @denisestlouie who has shared how she handled the anxiety she felt during her treatment.

After my recurrence I joined group therapy for 10 sessions that was specifically designed for cancer survivors and/or people currently in treatment for cancer. The group was cognitive-behavioral and so I learned coping skills and how to manage my thoughts when they brought me to the worst scenario - catastrophic thinking. I would have liked more time to talk with the others within the group about our individual experiences but the group was not designed in that way.

Do you already see a mental health therapist? Are there cancer support groups in your local area?

Mayo Clinic has an online Gynecological Cancers support group that meets monthly and is facilitlated by a Mayo Clinic oncological social worker. The next meeting is March 10 and if you'd like to attend you are directed to register ahead of time.

GYN Cancer Support Group Meeting:

-- https://connect.mayoclinic.org/event/gyn-cancer-support-group-women-of-s-teal-jax-1-5b867991/

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@naturegirl5

@fighter2025 I understand. That's unfortunate that you cannot make that out-of-state trip at this point in time. Do you think you will pursue that second opinion locally so you can decide whether to continue with the current treatment or move to another option?

I think it's a reasonable assumption that most anyone diagnosed with cancer is going to be anxious even if they have not experienced anxiety in the past. Your history as you've described it with this recurrence is a huge adjustment and change in your present life. No one prepares for this.

I'm tagging @denisestlouie who has shared how she handled the anxiety she felt during her treatment.

After my recurrence I joined group therapy for 10 sessions that was specifically designed for cancer survivors and/or people currently in treatment for cancer. The group was cognitive-behavioral and so I learned coping skills and how to manage my thoughts when they brought me to the worst scenario - catastrophic thinking. I would have liked more time to talk with the others within the group about our individual experiences but the group was not designed in that way.

Do you already see a mental health therapist? Are there cancer support groups in your local area?

Mayo Clinic has an online Gynecological Cancers support group that meets monthly and is facilitlated by a Mayo Clinic oncological social worker. The next meeting is March 10 and if you'd like to attend you are directed to register ahead of time.

GYN Cancer Support Group Meeting:

-- https://connect.mayoclinic.org/event/gyn-cancer-support-group-women-of-s-teal-jax-1-5b867991/

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Thank you, now registered 🙏

I need something for sure. Now, Rx has been written & I am not sure if they are leaving me any choice but I am certainly not happy on adding one more to the cocktail of drugs already my body is handling.
Being alone without any family support & trying to figure out my whole life (all that I wasn’t prepared for) figure out at once. Not to mention concern on job, healthcare benefits.

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@fighter2025

Hello, really appreciate you taking the time sharing your treatment journey with us. Sound like you have an amazing oncologist. This is super awesome.

When you say, no food containing estrogen … you mean plant food like flax, soy, etc that we know have phyto estrogen?
I was also told to stop medicinal mushrooms consumption during chemo & restriction continues while on Keytruda too.

I have been strictly on no-oil vegan diet but recently started including eggs & fish for the sake of protein. Not sure good idea or bad.

For exercise, I just walk whenever I can, especially as weather permits.

I have also run into the sleep issues. Massaging bottom of my feet with little bit oil, including area in-between toes.
I wear thin socks to prevent oil stains to sheets & take them off if feeling hot. This has tremendously improved the sleep situation. Hope it works for you as well.

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We're you on a restrictive diet like that before your diagnosis? Some people can eat like that, but others don't do so well.

I have a friend who has tried to be vegetarian, but can barely last a week before he starts feeling awful. He then tried just eliminating red meat, while still eating fish and chicken. That lasted about a year, after which he said he felt weak, was always cold, and had brain fog. He then ate a hamburger and claimed he almost immediately felt the brain fog lift. He concluded that there was a nutrient in red meat that he needs (not iron; he was taking supplement).

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@fighter2025

Hello, really appreciate you taking the time sharing your treatment journey with us. Sound like you have an amazing oncologist. This is super awesome.

When you say, no food containing estrogen … you mean plant food like flax, soy, etc that we know have phyto estrogen?
I was also told to stop medicinal mushrooms consumption during chemo & restriction continues while on Keytruda too.

I have been strictly on no-oil vegan diet but recently started including eggs & fish for the sake of protein. Not sure good idea or bad.

For exercise, I just walk whenever I can, especially as weather permits.

I have also run into the sleep issues. Massaging bottom of my feet with little bit oil, including area in-between toes.
I wear thin socks to prevent oil stains to sheets & take them off if feeling hot. This has tremendously improved the sleep situation. Hope it works for you as well.

Jump to this post

estrogen: meat, white and red. Flax seed OK but make sure it is not from China or India, as the soil is contaminated with cadmium and copper. Re soy: OK in moderation, t be careful of soy powders. Eggs although high in fat, don't seem to have estrogen (as far as I can figure). Fish is excellent: cold water, salmon is best in moderation sardines and mackerel better, cause they're little -- no mercury. Larger fish -- swordfish, halibut, should be eaten minimally if at all. No shellfish, apparently.
Eat mushrooms, not the supplements. Broccoli and kale really important--eat every day. Beans, lentils, quinoa all good. Whole gain starches -- brown/red rice, steel cut oats, bulgar, farrow all good.
Fruit and vegs are IMPORTANT. Don't skimp.

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@val64

We're you on a restrictive diet like that before your diagnosis? Some people can eat like that, but others don't do so well.

I have a friend who has tried to be vegetarian, but can barely last a week before he starts feeling awful. He then tried just eliminating red meat, while still eating fish and chicken. That lasted about a year, after which he said he felt weak, was always cold, and had brain fog. He then ate a hamburger and claimed he almost immediately felt the brain fog lift. He concluded that there was a nutrient in red meat that he needs (not iron; he was taking supplement).

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Yes, I adopted this dietary model back in 2019 with stricter endowment during Covid Era.

It’s a tough model to follow. Now, that is the only way of eating I know.

Thanks for updating me on estrogen heavy food choices to avoid. Glad to see they are pretty much aligned with how I eat.
I somehow need to figure out how to put my meal plates together with variety of foods to optimize nutritional values
.

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Hello Everyone,
Has anyone received Keytruda & experienced side effects?

For me there are gamut of effects I am feeling, making it even harder than chemo (Pac + carbo) and Keytruda.
About 3-4 weeks after the first solo infusion, little back pain started to experience. Now after 2-3 days after 2nd infusion, entire back is burning.
Numbness & brain fog ither concerning issues are they from chemo or Keytruda, hard to tell.

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