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@lhankins

@mlwh
I have a REMS scheduled next month and like you, neither my rheumatologist nor my primary care has any interest in the results. They are DXA only so I’m doing it for myself.

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Replies to "@mlwh I have a REMS scheduled next month and like you, neither my rheumatologist nor my..."

@lhankins Same here. My endo ordered a DXA only. While having the scan done, the radiology tech told me about TBS scores, which this scanner was capable of producing. She said she couldn’t provide it without an order from the doc. A few weeks later, my endo agreed to add an order for a TBS score.

My TBS score paints a much better picture than just the DXA. But the endo isn’t really interested and said nothing about it would change her recommendation (Tymlos) .

Still not sure about Tymlos. But decided to book a REMS scan on my own. Scheduled for 2 weeks from now. Looking forward to seeing what it says.

Same here. I just had the echo light, which is the rems… which showed much better numbers than my DEXA. I just had another DEXA and the numbers were slightly worse, putting me in osteopenia except for my left hip 2.8. I go to my endocrinologist on Tuesday and I will show her my echo light where the hip was 2.3. I asked the technician doing the DEXA if he felt the echo light was more accurate and he said yes because it’s a ultrasound that was his opinion. I have decided I am still not going to go on the medicines like Forteo. I am doing the hormone replacement therapy and will go up to the hundred milligrams for the testosterone pellet. my scores have improved since my previous DEXA with the testosterone, but I have not been on the full dosage recommended. I just don’t want to deal with the side effects of the conventional medicines..forteo. . It is so disheartening because I dread my appointment with the endocrinologist, they will not see outside the box not even recommending supplement, etc. it really makes me question the push from big Pharma …am I alone here? Thank you friends for all your input this site has been a treasure for me. I know everyone is different so I like to look at different opinions and it leads me to study more. Thank you again.