← Return to Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

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@meaganfeliciano31

I was diagnosed with sjogren's and fibromyalgia about 3 years ago but experienced symptoms much longer before receiving my diagnosis. I lost taste/smell about 6 months ago. It is very depressing and I have lost about 20 pounds. I was on hydroxychloroquine but experienced immunodeficiency and became very ill so I have discontinued it. I'm currently searching for a new rheumatologist as I did not like my previous one. He had no bedside manner and I don't believe he listened to all of my symptoms. I'm 36 years old and it's extremely difficult for me to get out of bed and function through the day. Im extremely fatigued. I experience night sweats to the point where you would think I just jumped into the pool. I have severe joint pain. I also experience symptoms of dysautonomia. I am becoming increasingly depressed and just feel defeated.

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Replies to "I was diagnosed with sjogren's and fibromyalgia about 3 years ago but experienced symptoms much longer..."

@meaganfeliciano31 Hi, I have several resources you can try for looking for a doctor. Check out comprehensive medical centers (in your state) and university/teaching hospitals.
There are also
NORD. https://rarediseases.org/living-with-a-rare-disease/
GARD https://rarediseases.info.nih.gov/
Autoimmune Association. https://autoimmune.org/resource-center/finding-a-physician/
These 3 organizations keep lists of doctors so give them a call!
Becky