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Dexa Scan after 18 mo on Tymlos

Posted by kathleenintexas @kathleenintexas, Sep 13, 2024

DEXA scan of spine from June 2022 showed T-score of -4.7 (age 71). I had a baseline scan November 2022 before starting Tymlos at a different facility showing -5.1, but I am not sure it was accurate, because a recent scan result from there was not believable.
Decided to go back to the original facility in August 2024. T-score was -4.1, which is a 12% improvement from the 2022 scan, so the Tymlos is working. I am very pleased with the results. If the -5.1 scan was accurate, then the improvement is even more impressive.
I am working with Dr. Keith McCormick (phone consults as he is in Massachusetts and I am in Texas) and after the Tymlos he will recommend the next medication to protect the bone I've gained. He is so knowledgable and I trust him. He was diagnosed with osteoporosis at age 45, successfully increased his bone density and has maintained it for over 10 years. I had seen two endocrinologists and my primary and they didn't know a fraction of what Dr. McCormick knows. I really recommend you work with a true expert who knows about bio markers (P1NP, etc.).

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drummergirl | @drummergirl | Sep 19, 2024

Thanks Windyshores. Very informative. I am leaning toward staying with fosamax. Feels safer to me. I am only 3 1/2 years away from breast cancer and unwilling to tempt having it come back. I have experienced too many medical errors, so will be very cautious. You always have good info on this forum. Congrats on your 10 years free.

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kathleenintexas | @kathleenintexas | Feb 28 6:47am
In reply to @windyshores "@jacklin Dr. McCormick is not an MD. He is a chiropractor in private practice who now..." + (show)
@windyshores

@jacklin Dr. McCormick is not an MD. He is a chiropractor in private practice who now focuses on osteoporosis. His first book was "A Whole Body Approach to Osteoporosis." His more recent 700 page book is "Great Bones."

McCormick cannot prescribe so @kathleenintexas how do you get around that?

My doctor does not do bone marker testing and explains that they do not tell us everything going on in bones. One example: my kidney disease affects CTX. I have talked with McCormick for maybe 16 years and of course he relies on bone markers. There are other areas where they differ. I like having different opinions, actually, though it is hard too.

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As far as prescriptions go, I talked at length with my primary care physician in 2022 and she was willing to prescribe what Dr. McCormick recommended. She had me sign a release of liability, but she has been great, ordering the blood tests he has needed, etc. Having finished two years of Tymlos Dr. McCormick is recommending Evenity. My PCP has never prescribed it and wants me to see an endocrinologist. I am hoping the new doctor will also work with Dr. McCormick and take his recommendations.

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