I am new to this forum.... 11 years ago I had a crown put on a tooth. The next day I was overwhelmed with a sudden and extremely dry mouth. My first reaction was that nickel was used...which I am allergic. Long, long story shortened, dentist didn’t agree, I had crown removed, changed dentists and went in search of reason for the over intense, high anxiety reaction to my mouth. After going to 8 different specialists, an oral pathologist was able to show me literature which described my situation to a T. Diagnosed with Burning Mouth Syndrome ( similar to Sjogrens Syndrome, but brought about quickly and without explanation, such as taking medication which could cause it)...I was put on Pristq for anxiety. Improvement at approximately 50-60% was obtained which helped but would have liked better, I was on that until changed to Effexor for anxiety due to cost/government. Etc.
I have always had a low tolerance of meds, and take nothing other than this, so only put on 37.5mg. The Effectiveness was about 10% better .. so after talking with my Dr he was going to change me to something that worked on neuropathy type problems..Cymbalta. I was given instructions on decreasing my Med with took about 2 weeks until completely being off them. Last Tues was my last pill. There was no deterioration of the discomfort of my mouth so I thought I might stop taking any other Med at this time. I had no problems until Friday. Got ready to go to the gym but nausea and dizziness started up. I have vertigo occasionally, and thought that was what was happening. Rested for a couple of hours only to get up with multiple other things going at me! Hot/cold, nausea/ headache, emotions swinging right and left, tears/anger/rage...just to name a few. The weekend has been UNBELIEVABLE! Started reading on this sight on Friday night, from posts dating back to early 2005..Described me to a tee except the sucidal thoughts Insomnia hit that night but when able to sleep had scary nightmares! So sorry for this long post...went to gym yesterday..stumbling, confused and emotional but determined to exercise. Rode the stationary bike for 5 miles. Unable to do anything else. I have read on here that it could be up to 3 weeks to longer to get thru this nightmare. Has anyone had faster improvement using exercise? What about diet? Nothing sounds good. Have eaten soup for 3 days and only water. Having the shakes more today (Sunday) with tears popping up unexpectedly. Has anyone seen improvement with a specific diet? Thank you for this forum. It has given me insight and hope that there is light somewhere, sometime at the end of this tunnel. Looking for milestones..one week down on Tues! Patrn