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Stage 3 Triple Negative Breast Cancer

Breast Cancer | Last Active: 2 days ago | Replies (23)

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@petersok26

Hi @kevachanel38 -

I can relate to most of these stories posted and will add my own here. I am just over a year out from a Stage 2b TNBC diagnosis (2/6/2024) at the age of 33. It has been a long year, but I remind myself every day how much I've been through and am so grateful to see the light at the end of the tunnel on my treatment regimen. I don't carry any sort of gene mutation or have a history of breast cancer in my family (the only link may have been my aunt, who had colon cancer at the age of 31).

I was on a research study right away that was testing a vaccine injection directly into the tumor along with immunotherapy and went through 2 of the 4 treatments for that piece before moving on to the standard of care treatment since my tumor was not shrinking. The first 12 weeks were weekly taxol/carbo plus pembrolizumab (keytruda) every 3rd week. If you haven't already, I highly suggest getting the ice pack mitts/boots to help with potential neuropathy - it's not fun, but they truly help! My tumor shrunk significantly on that treatment and I went on to the next phase of treatment which was an additional four cycles of pembrolizumab plus doxorubicin–cyclophosphamide (red devil) every 3 weeks. My tumor actually grew on that treatment and I had my surgery moved up a few weeks from when it was initially scheduled. I ended up going with a direct to implant double mastectomy (personal choice) as I was hoping to avoid radiation after.

After surgery - I found out that I did not have any sort of lymph node involvement, and they were able to get clear margins around the tumor. So I can say that I am now surgically cancer free 🙂 My tumor did have 50% residual disease, so while I didn't have to have radiation, I am currently on round 4 of 8 of a 3 week cycle of oral chemo pills 2x/day for two weeks on and one week off with immunotherapy on day 1 of each cycle.

The ups and downs of this journey are truly ones that cannot be explained to others who have not gone through this themselves. Know that you are a part of the worst club, but with the best members. Some of the best advice that I received was to take things day by day - even hour by hour. Sending all the positive vibes and virtual hugs your way.

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Replies to "Hi @kevachanel38 - I can relate to most of these stories posted and will add my..."

Awww thank you for sharing your journey with me it’s sounds like I’m on the same treatment path that you were on , I’m starting my chemo next week and I’m definitely getting those mittens and boots , and I agree I feel like people who have not gone through this really can’t understand me and it’s hard for me to explain to them what I’m going through and I feel like everyone is so encouraging and I’m happy to amongst loving ladies like you thank you so much for your support , hugs and positive vibes