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Recurrance of endometrial cancer to lung

Gynecologic Cancers | Last Active: 2 days ago | Replies (26)

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@cookercooker

Hi there,
I have stage 3C endometrial cancer. Metastases has occurred since my my first and only series of pac/carbo (6-rounds). Apparently this means I'm platinum resistant. Doc thought putting me on hormonal treatment using Anastrozole (Arimidex). About 9% effective but doctor thought it might do 'something' so that I could go away for a few months at a time and take the the pills. Tried them for the first month at home and they didn't do a thing.
Special diet with any kind of HER positive cancer is mainly vegetarian -- no foods containing estrogens. Exercise when you can, even if it's just a short walk, and increase the level/time when you begin to feel better. Sleep when you feel tired.
I use a heating pad at night on and around pelvis, just because it's so comformy. Go to bed at the same time each night. I took zopiclone as a sleep aid only when I woke up in the middle of the night and couldn
t fall back to sleep. I always took melatonian-10mg--about an hour before betime too.
I don't take them now because I'm on a different cancer treatment and the oncologist forbids me to take 'cancer supplements", like melatonin, indole-3-carbinol, Naltrexon, Quercetin*, and turkey tail or reishi mushroom extracts. I discovered that Quercetin was a no-no for HER2 cancer.
While I was on these supplements I noticed that pain in my pelvis decreased and stopped some bleeding. While the pain hasn't increased since stopping, the bleeding has, a little bit.
As for the lungs: my last CT scan (one week ago) did show tiny spots, which the oncologist couldn't determine if they were cancer, or infection or something else. These spots appeared 10 months after my pac/carbo treatment ended. She said they're too small to treat. I assuming the new treatment regimen I'm on will address them if they are cancer.
The treatment I'm on now is ENHERTU.
Hope any of this helps.

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Replies to "Hi there, I have stage 3C endometrial cancer. Metastases has occurred since my my first and..."

Hello, really appreciate you taking the time sharing your treatment journey with us. Sound like you have an amazing oncologist. This is super awesome.

When you say, no food containing estrogen … you mean plant food like flax, soy, etc that we know have phyto estrogen?
I was also told to stop medicinal mushrooms consumption during chemo & restriction continues while on Keytruda too.

I have been strictly on no-oil vegan diet but recently started including eggs & fish for the sake of protein. Not sure good idea or bad.

For exercise, I just walk whenever I can, especially as weather permits.

I have also run into the sleep issues. Massaging bottom of my feet with little bit oil, including area in-between toes.
I wear thin socks to prevent oil stains to sheets & take them off if feeling hot. This has tremendously improved the sleep situation. Hope it works for you as well.