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Anyone else have CHEK2 gene mutation? And have had multiple cancers?

Cancer | Last Active: Feb 27 2:23pm | Replies (75)
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@colorado73

Yes!!!
I'd LOVE to start a support group!
I could sure use some encouragement through this journey.
I just had breast reconstructive surgery AGAIN. Smaller implants due to the incompetent Surgeon I had to begin with. He OVERFILLED my 1st implants on purpose for HIS idea of what I should look like!
But thank God I found a new Dr that listened to me & has compassion & love for his patients! I'm so blessed! I've struggled with pain for 3 years due to the other implants. Nerve damage & pain. And I'm still in physical therapy, 3 years now. The woman I see is FANTASTIC & has to s of compassion for her patients too & has worked with me since day one! And continues to work with me.
Like having breast cancer isn't stressful enough, I had a surgeon that didn't care about what I wanted or how I felt. So suffering through that for 3 years was extremely hard! So stressful.
But I'm grateful for my new care team & I Thank God every day.
But yes, I'd love to hear from other out there that are struggling too with this gene mutation. Dr's are watching a cyst on my ovaries, a spot on my lung & my colon. Ugh ..

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Replies to "Yes!!! I'd LOVE to start a support group! I could sure use some encouragement through this..."
Zebra | @californiazebra | Feb 27 1:26pm

@colorado73
Sorry for all you’ve been through and the unnecessary added pain issue. I had years of excruciating pains from keloid scars post-mastectomy that shouldn’t have happened. Long story. I have CHEK2 and BRCA2 mutations. Breast cancer and neuroendocrine lung cancer. Lung issues are unrelated to the mutations at least based on today’s science. Tomorrow’s science may tell a different story.

BTW, I had cysts on my ovaries for decades due to polycystic ovary syndrome. Ovaries gone now. PCOS causes metabolic issues but the cysts were never cancerous. Hopefully your cyst is something more benign like that.

I know how you feel though. Once you have cancer, every new pain, cyst or anything makes you wonder.

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