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Are specialists necessary?

Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (27)

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@kereno

Thanks for sharing your story. I was my husband's caregiver for years (he died of something else not germane to this discussion) so I empathize with your wife! But it's got to be hard to be led around by your partner--I sympathize with you, too. It sounds like love and self-preservation are duking it out, marital-style. I consider the health professionals, too! In our stressed-out, polluted world it must be very interesting to try to diagnose and treat all the diseases and syndromes that walk through the door at a clinic, especially now that scientific inquiry itself is being challenged and medicinals have become an industry. At such a juncture as this I am feeling well enough in my flare thanks to tapering doses of prednisone and prioritizing healthful living (diet, exercise, rest, connectivity). I also take into consideration the advice of my naturopathic doctor who steps into the conversation to suggest nutritional supplements (after deferring to my medical team for diagnosis and treatment plans). In the end, I think stepping back from it all and communing with our own inner wisdom (God, in my book) gives me the perspective to learn what there is to learn from life's experience, find gratitude and acceptance, and be at peace. That's the medicine that I can take with me no matter whom I see, what I take or do, and whether I thrive or struggle through this phase of life. It sounds preachy, but I'm going to say it: love is the answer. So, love to everybody out there!

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Replies to "Thanks for sharing your story. I was my husband's caregiver for years (he died of something..."

I believe in God! I was planning on having a face to face visit with God eventually. I admit to being irritated with God so I was looking forward to having a chat with him sometime in the future. I didn't see any need for all the pain I had for 30 years.

An amazing thing happened. I posted a message on a chronic pain forum similar to this one. The topic was "Alternatives to Prednisone." A person responded to me and explained things to me. She was in a coma for 6 months after having an adrenal crisis. She had adrenal insufficiency due to her many years of prednisone use. She had adrenal failure.

While in a coma she claimed that she was "sent back" for some reason presumably to have a chat with me. She didn’t want me to have the same fate.

She had lots of details to share about prednisone. She recommended certain medical specialists to help me get off prednisone. Four years later ... I was off Prednisone. I got a lot of help from medical specialists.

Had it not been for the person on the chronic pain forum, I no doubt would still be taking prednisone. Now if I have that face to face visit with God … I don’t have too many questions.