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← Return to Anyone taking Rezurock?
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Hi @clock456. I’ve only found one other BMT member who has mentioned Rezurock for GVHD but that was in reference to possibly starting the drug. I’m not sure if she did. I’ll tag @alive. She may be able to offer her 2 cents worth. This is her comment of reference. https://connect.mayoclinic.org/comment/634576/
Some of the specialty meds are sure spendy. I’ve had two experiences with meds from a Specialty Pharmacy. (SP) First for my AML mutation and then following the BMT. Even though the meds were out of network, they were covered after a note from my BMT team and discussion with my insurance case manager. Quite often the SP’s will offer connections for grants to help defer costs or discounts from manufactures. Have you spoken with your husband’s insurance case manager or the speciality pharms?
What type of gvhd is your husband experiencing?
Was he initially taking Tacrolimus post transplant?
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@loribmt
He has grade 2 skin GVHD. Steriods help but they make his sugar very high and it is not for long term use. He was taking Tacrolimus but it affected his kidney function, magnesium, and potassium levels so they had to take him off of it. Then, the Jakafi affected his WBC count too much. So, now he is on Rezurock.
BCBS covers all but our co-pay and I think the manufacturer is covering that since we have no out of pocket expenses. It is $20,000 per month for 30 pills. It took a few calls to BCBS to get it approved. But, it wasn't too bad; two out of three of the people I spoke with were extremely helpful.
It is still hard to believe he is already 6 months post transplant. In 9 more days, it will be a year since his diagnosis. He is doing better every day. All of his tests report no leukemia and 100% donor cells in blood and marrow. In terms of GVHD his has been mild. We count our blessings every day and are finally starting to breathe a little.