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DiscussionHow are you dealing with transverse myelitis?
Spine Health | Last Active: Mar 15 8:20pm | Replies (10)Comment receiving replies
Replies to "I developed myelitis from a virus over a year and a half ago and am still..."
I have a complicated condition. I’m experiencing weakness especially in my lower body along with intermittent tingling. My legs feel rubbery and my upper body feels a bit shaky. It seems to be coming from my cervical spine. I exercise every morning and try to take walks. I did Vyvgard Hytrulo injections for a couple of months. I’m not sure if it helped, but I was doing a little better. A low dose of Valium twice a day has been helping as well. I started pt and they saw my neck was very weak. After doing some neck exercises at my first appointment , I have been extremely inflamed throughout my body. Now, I have a setback and need to just rest.
I was diagnosed 8 months ago and haven’t returned to my active lifestyle. I’ve tried many treatments and have improved since the onset, but not nearly where I used to be.
I would welcome any help if anyone else is dealing with this.
@jaz4 I wanted to welcome you to Connect. I don't share your diagnosis, but I am a spine surgery patient. While you wait for other responses, do you have some coping tips that you would like to share?