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Oxaliplatin is no walk in the park, advice for CAPOX regimen?

Colorectal Cancer | Last Active: 13 hours ago | Replies (35)
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@duane4cancer

I was on a Capox treatment for 8 cycles. I quit the Oxaliplatin after 4 cycles because the side effects were getting worse. With each treatment, it was taking longer for the side effects to go away. To enjoy any cold drink, I had to take a straw and drink it like a gerbal. And studies have shown that the benefits of 8 cycles vs 4 of Oxaliplatin is pretty low. I have mucinous adenocarcinoma, and this treatment wasn't effective for me and has spread. I worry about the neuropathy in my feet not restoring. Oxaliplatin is a harsh chemo. It bares contemplation whether a different chemo is a better alternative.

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Colleen Young, Connect Director | @colleenyoung | 2 days ago

@duane4cancer, it's not uncommon for an oncologist to recommend reducing the dose of a drug in a regimen or to eliminate it if the the side effects are limiting quality of life. My dad also stopped the oxiplatin in his regimen due to increasing neuropathy and to try and avoid it being permanent. He also had type 2 diabetes, so that increased his risk of neuropathy.

Duane, how long has it been since you stopped oxiplatin? Are you currently on any treatment?

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