← Return to Bone density drugs

Discussion

Bone density drugs

Bones, Joints & Muscles | Last Active: 6 days ago | Replies (115)

Comment receiving replies
@ronma

I understand your concern about osteoporosis medications and the side effects you've experienced. This is definitely a challenging situation that many people face.
Unfortunately, it sounds like you've already tried several different classes of bone-strengthening medications and experienced significant side effects with each one. Finding the right osteoporosis treatment that's both effective and tolerable can be quite difficult.
Some thoughts on your situation:
While I can't recommend specific medications since I'm not a medical professional, there are a few approaches you might discuss with your doctor:

Consider asking about denosumab (Prolia), which works differently than the medications you've tried
Discuss whether a lower dose of one of the previously tried medications might reduce side effects while still providing some benefit
Explore non-pharmaceutical approaches that might help alongside medication, such as weight-bearing exercise, calcium and vitamin D supplementation, and fall prevention strategies

For anyone tracking their physical activity as part of bone health management, like 2 miles for walk is better so it is about 4800 steps. (howmanysteps.net/2-miles-to-steps/)
I'd strongly recommend discussing these challenges with your doctor or perhaps seeking a second opinion from an endocrinologist who specializes in osteoporosis. They can review your specific medical history, bone density results, and previous medication experiences to help determine the best path forward.
Would it be possible for you to consult with a specialized bone health clinic? Many larger medical centers have dedicated osteoporosis or metabolic bone disease clinics with specialists who have extensive experience handling complex cases like yours.

Jump to this post


Replies to "I understand your concern about osteoporosis medications and the side effects you've experienced. This is definitely..."

Very difficult to find specialized bone programs. If anyone knows of one, please advise. I’ve received zero guidance or help from my doctor.

I have taken Prolia for three years and the last two doses made me wish I could die. I had such excruciating pain I couldn’t get of bed for weeks at a time. I couldn’t bend down to pickup anything off the floor. I have Spondylolisthesis as well. I couldn’t get the courage to go to grocery store for fear of falling. I couldn’t host Christmas for the first time in 30 years. My doctor now insists I go on Reclast Infusions. My first infusion is 3/11/25 and I’m terrified. Anyone on here have any info on Reclast?