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Pancreatic Cancer | Last Active: 2 days ago | Replies (17)

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@sheridanb

I'm sorry you and your husband have joined this club. It is sad and scary. My husband was white water kayaking and skiing and backpacking... often the strongest in our group... and now can barely walk across the room. Spends most of his time watching tv as getting off the couch is a chore. I wish I had magic words for you, but like you, after finding him on the floor a few times, I am afraid to leave him alone. I just got a walker for him that he has not used yet, but the day is coming. My only advice is to keep pushing the doctors if you think things are not happening within a reasonable time period. I can send messages to the doctors through the hospital portal and I have done that to make sure they are aware of his rising CA19-9 numbers... and let's make an appointment for a scan to see what is going on. He has 4 MRI's and a CT scan scheduled for next week along with chemo and several doctor appointments. Town is an hour+ away... but that is ok. I want the doctors to stay on top of this. I recognize that I need to be the strong one in the house now as it is just my husband and our dog. But it sure was easier when Dan was the strong one.

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Replies to "I'm sorry you and your husband have joined this club. It is sad and scary. My..."

Oh yes, its very hard... I am trying... Our daughter moved back with us, which is a big help... but we are scared and worried.... we are considering a 2nd opinion.... although our Doctors are nice... I feel they could be doing more..., I feel they are giving up on is because it metastasized... but I am being my husbands advocate... the best I can... this is all sooo scary to us.