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Atypical lobular hyperplasia: Did you have surgery?

Breast Cancer | Last Active: 3 hours ago | Replies (97)

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@jennfer72

Glad I found this forum! I just had a lumpectomy for a confirmed ILC tumour, 1.4 cm, grade 2. In the extra margins they took, they found ALH. I should be so happy... it seems my ILC was quite "contained" still as all my margins were negative for cancer, and my nodes were negative as well! But this is such a scary piece of info. I feel like there are baby cancer cells waiting to turn evil still left in there. 🙁 Meeting doctor on Tuesday and scheduled for radiation and AI's or Tamoxifen... but will the radiation kill the ALH? Anyone else had this experience? Thank you!

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Replies to "Glad I found this forum! I just had a lumpectomy for a confirmed ILC tumour, 1.4..."

@jennifer72 My RO told me that the purpose of the radiation is to kill any stray cells. Lobular is usually not palpable. I never felt mine. The first report called it "tubulo-lobular." But from the look of some sample slides online, the lobular cells always line up. The Dr who read the mammogram saw an "architectural distortion." Thank goodness!