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Has anyone really gotten over CIDP?

Autoimmune Diseases | Last Active: Feb 28 11:07pm | Replies (62)

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@danawyn

Don't use Google! Search the Mayo Clinic website or National Institute of Health (NIH.gov). Search your symptoms and show show THAT to your neurologist AFTER they examine you and give you their opinion. Then ask them if it COULD be CIDP. That way you are respecting their knowledge and expertise while also having some information in your back pocket. They will appreciate your not coming in with a pre-self-diagnosis and letting them investigate first.

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Replies to "Don't use Google! Search the Mayo Clinic website or National Institute of Health (NIH.gov). Search your..."

Also, I was diagnosed in 2014 (and did exactly what I stated above). After 10 years of twice monthly IvIG, I have been in remission without treatment since December 2023. We do and can recover!!! I will always have CIDP and their is always a chance of relapse but I am living each day like it is a gift!!

Great idea and approach, thank you!