← Return to Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

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@josmio

Hi. I’m also going through the dryness and loss of taste. When I started taking Pilocarpine, I got so dizzy and fell in the bathroom. But I restarted taking them again because I am just so dry everywhere. I also decided to take it again because I found out that I had dysautonomia with vertigo and syncope. I take it 3X a day now and I am not as dry now. There is Cevelimine. It has less side effects. I also freeze fruits and just enjoy them. I keep slices of limes and lemons to take them wherever I go. They help me. In the summer, I always have ice chips.
That soft area at the bottom by your jaw is where I was told to rub softly and the area below the cheekbones. It stimulates that saliva production.
The nausea could be the reaction you have with taking so much of whatever sweeteners that are in those gums, lozenges, and mints.
I also had lost my taste and it’s been difficult. I tend to over season the food I cooked. I also have these cravings. I just eat for the nutrients and try to be as healthy as I can.
Hope you find something that helps. I just want to say that I can relate to what you’re going through. Take care.

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Replies to "Hi. I’m also going through the dryness and loss of taste. When I started taking Pilocarpine,..."

I so appreciate your response. 💕The loss of taste and dryness, has taken a lot of joy out of my life. I hardly cook anymore, and I always enjoyed cooking and eating.
Thankful to my husband that has taken over the cooking, he is amazing! I agree that the nausea is from all the logenzers and gum. I have ordered all sugar free gum and candy. Seems to help
I am a Canadian citizen and cannot purchase cevelimine, not sold in Canada. Was not approved😕
Thank you again for sharing your story, it means a lot to mean. Have felt alone on this journey, espcially the loss of taste
Take care and keep fighting💕lorrie