Does anyone recognize these symptoms?

Posted by martinleah @martinleah, Feb 23 4:39am

Hello I am a 30 year old female. I have been chasing down a chronic illness for 6 years, acutely for 2. I will have periods of intense flare ups where I will be symptomatic for a week or so straight and then periods of time where I will be relatively normal.
Symptoms are:
Nausea, tingling in hands/legs and/face, Occasional loss of use of hands and face, low BP, high BP, high heart rate that will wake me up at night, pounding heart rate I can visibly see in my abdomen, bloating, constipation, inability to eat, confusion about where I am, stomach cramps and grumbling, violent chills even when warm. At its worse I lose consciousness for a couple seconds. I have passed out a couple times.

I have been to my gp who did blood work, a cardiologist that did a full body vascular ultrasound and heart ct and heart monitor for a month, an immunologist who ran blood work to check hormones and autoimmune diseases, a neurologist who did a brain MRI and EEG, a gi specialist who has done an upper GI scope and an abdominal CT and colonoscopy and feces culture. The doctors except my gi doctor said nothing is wrong with me and told me to stop coming. I have no idea where to turn next. Does anyone have similar symptoms?

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diannesmcneill | @diannesmcneill | Feb 26 9:59am

First get copies of all your test results and read. I was at my mother in laws house once when I recognized her sudden outburst as a seizure. My husband scheduled testing. After testing nurse called my husband and said everything fine/no seizures. I called to have the test report sent to me. Very clearly the testing report showed seizures. I called the nurse back and suggested the doctor re-read the report. I got a call back and yes she was having a seizure during testing and the Dr prescribed medication for seizures. READ YOUR TEST RESULT REPORTS. You might consider getting a smart watch that you wear on your wrist that measures pulse, heart beat, etc. Write down what symptoms you are having and what time. Write down time of any medication you are taking.

Jennifer, Volunteer Mentor | @jenniferhunter | Feb 26 11:18am

@martinleah Hello, I want to welcome you to Connect. Have you had any injuries such as a whiplash or other injuries prior to the start of your symptoms?

markk17 | @markk17 | Feb 27 10:48am

Have you been checked for Lyme disease and coinfections. there are two labs that will give you an answer Igenx in California and vibrate in California. you can't use the local tests that we get from our doctors they're terrible 80% wrong through the western block or the elcie test. I hope this helps you out.