Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

hello all - i'm moving here from the PMR support group! In January i was interviewed for a spotlight, so this will tell you a lot about me.
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/gardening-wordle-and-living-with-pmr-meet-nyxygirl/
After tapering off of Prednsione , the challenge has been reacquainting myself with pre-PMR aches and pains - Low Back pain , anyone ?!!
I found a great resource already in these conversations, especially about 'PAIN Reprocessing Therapy ' . I will make a reply there. - nyxygirl

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@elizabethruskin

Liz. Chronic pain osteoarthritis everywhere, some spinal injuries, Walker, constant pain, I have avoided opioids for 21 years due to malpractice use by Healthpartners, now avoid steroids due to side effects, feeling at the end of the road, trying to remember joy

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I know how hard life has become. Try to take one day at a time because it's too easy to become overwhelmed. Sending a hug because I understand and I care.

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I feel like my life sf over as far as joy goes. My neuropathy is as bad as it has ever been. What’s the cause? Who knows, the doctors don’t know what to do. I take Hydrocodone 325mg (3 times/day), anti-depressant meds, Alpha Lipoic Acid (1800 mg) /day, Gapapentin 100, 2 in the am and 1100 mg, 3 in pm.
Nothing seems to help, it’s getting worst ever month.
I am having trouble with my balance, I am freezing most of the times and my attitude is really bad and getting very depressed.
I have no help! My wife passed away 2 years ago and I am by myself.
Where do you turn next for help?
So many scams out there.

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Hi, I’m Margo suffering from leg pain which causing great pain if I stand. Because of the pain I can’t walk. Some have said I have SI. But I don’t have back pain. I’ve done PT that hasn’t helped. Looking for an Orthopedic doctor now. I’ve not walked in almost 3 months.

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@daisyafa

Hi, I’m Margo suffering from leg pain which causing great pain if I stand. Because of the pain I can’t walk. Some have said I have SI. But I don’t have back pain. I’ve done PT that hasn’t helped. Looking for an Orthopedic doctor now. I’ve not walked in almost 3 months.

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Hi Margo I have severe stenosis and I actually already had minimally invasive surgery a year ago but it came back after a few months. Now I also have pain from walking and standing again after it went away only for about 3 months after the surgery. Have you had an MRI? You might need surgery once you get the MRI or actually you need to find a back doctor first to prescribe an MRI.

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Hi, I’m Debbie and I have bad arthritis in all areas of my body. I am a couple of months away from being 69. Also have fibromyalgia and anxiety. Right now trying to get something done about my neck pain. MRI the coming weekend. Have had several replacements throughout my body and multiple surgeries. Glad to be apart of the chronic pain group.

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@fmmartinez58

I am so very sorry that you're living in chronic pain. It drains your energy and it rules everything in your life. It's also very difficult to not be able to fully trust your doctor. ❤️

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what was the name of the new pain med--study was done but maybe not approved yet.

I would like to be in a study
thanks for reply. going for another injection but previous never worked so may be my last visit.

virginia hotchkiss

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@deb524

Hi, I’m Debbie and I have bad arthritis in all areas of my body. I am a couple of months away from being 69. Also have fibromyalgia and anxiety. Right now trying to get something done about my neck pain. MRI the coming weekend. Have had several replacements throughout my body and multiple surgeries. Glad to be apart of the chronic pain group.

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I take xanax for anxiety

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@deb524

Hi, I’m Debbie and I have bad arthritis in all areas of my body. I am a couple of months away from being 69. Also have fibromyalgia and anxiety. Right now trying to get something done about my neck pain. MRI the coming weekend. Have had several replacements throughout my body and multiple surgeries. Glad to be apart of the chronic pain group.

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I have had pain for 10 years from a failed spinal fusion. Since then, I've been working with a pain specialist and have been on Norco for the last 5 years. My pain doctor sent me to a nerosurgeon and he said he could help me with a Laminectomy and Discetomy. Had that done and now suffering again from the scar tissue. My pain specialist said not to have the surgery and I didn't listen.
He thinks it's the scar tissue from the surgery. Waiting for a script for a new MRI . Until then I suffer.

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@linda6101

I have had pain for 10 years from a failed spinal fusion. Since then, I've been working with a pain specialist and have been on Norco for the last 5 years. My pain doctor sent me to a nerosurgeon and he said he could help me with a Laminectomy and Discetomy. Had that done and now suffering again from the scar tissue. My pain specialist said not to have the surgery and I didn't listen.
He thinks it's the scar tissue from the surgery. Waiting for a script for a new MRI . Until then I suffer.

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So sorry .Its frustrating, I know. Sometimes you just don’t what to do.

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