← Return to What online forum is appropriate to discuss public policy- NO POLITICS

Discussion
Comment receiving replies
@colleenyoung

@ericy210, you're right. The purpose of Mayo Clinic Connect is to share health experiences to improve one's health. As per the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/), not a place for political discussion as you point out.

Advocacy and policy about long COVID are important. There are various places to share your experience and let your voice be heard to help change policy. Here are a few places I found via internet search (not an endorsement):
- The Long COVID Alliance https://longcovidalliance.org/home/about-us/
- COVID-19 Longhauler Advocacy Project (C19LAP) https://www.longhauler-advocacy.org/about
- Patient-Led Research Collaborative https://patientresearchcovid19.com/

Facebook may be another place to search for such groups.

Jump to this post


Replies to "@ericy210, you're right. The purpose of Mayo Clinic Connect is to share health experiences to improve..."

Also a good news source for long covid policy and politics is the Sick Times Newsletter. https://thesicktimes.org/newsletter/