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Does anyone have a glomus brain tumor (paraganglioma)?

Brain Tumor | Last Active: Mar 9 2:50pm | Replies (20)

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@rebecca08

I have recently been diagnosed with a brain tumor attached to my jugular vein and surrounded by nerves in which I was told was inoperable. My symptoms are dizziness,fatigue,double vision, and some memory loss..my neurosurgeon said none of these symptoms can be caused by this tumor and was told that he will just keep an eye on this tumor to see if it grows. Was told I'm able to drive and work without restrictions my job is in the automotive manufacturing as a production worker. I can see with a patch over one eye but the dizziness and fatigue is making it hard even not working at home

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Replies to "I have recently been diagnosed with a brain tumor attached to my jugular vein and surrounded..."

@rebecca08, that is disconcerting that you have symptoms that may working and living hard. I'm sure you would like to understand why you're having these symptoms if it is not the tumor and what can be done.

Did your neurosurgeon offer an idea what may be causing the symptoms? Were you given a referral to someone who may be able to help with the dizziness? Have you considered getting a second opinion?