I feel for all of you who posted on this thread. It saddens me to hear your struggles and grief.
My wife was diagnosed with Lewy Body Dementia just over 6 years ago at the age of 54. Initially, they thought she had early onset Alzheimers but began showing the combination of early onset Alzheimers and Parkinsons at the same time. I took care of her 24/7 for the past 5 1/2 years but my poor honey got to weak and confused to allow me to provide showers and other crucial personal hygiene. My plan was to take care of her until Jesus took her home. I remodeled our home to accommodate for her handicap (adjustable bed, handicap shower, etc). Little did I know that even with all of those things in place, her care would be more than I could handle alone. I made the decision to have her placed in a nursing home (also at the recommendation of her neurologist ) that is located in our small town. It is absolutely wonderful. Even though my guilt of not getting the job done by taking care of her myself, often plagues me. We have four adult children who live close enough to see her on the weekends.. We are truly blessed. I'm just rambling here but I just needed to share. Not many people who a person can turn to who truly understands. Thanks for allowing me to post. This disease so debilitating and relentless. It is the longest good bye I have ever had to say to a loved one. And yet, in God's grace and mercy, I am able to see her right away in the morning and feed her breakfast. Then see her in the afternoon and stay to feed her supper. Statistically, Lewy Body Dementia is very progressive and most pass away from 5 to 7 years after diagnosis from what I've learned. Having said that,.this might be my wife's final year on earth. I am thankful for the 40+ years God has given me and my children.
I pray for all of you. I hope your journey has beautiful memories that you can make. Ours did.
God bless.🙏
For all of you full time care givers - give yourself breaks. Ask for help. Otherwise, you will become overwhelmed and exhausted. At least that's been my experience.