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My Anger is overwhelming

Cancer: Managing Symptoms | Last Active: May 13 8:15am | Replies (67)

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@denisestlouie

The really strange thing about my autoimmune disease, Crohn's, it was silent. I had no stomach issues at all until a bowel obstruction. Not having prior symptoms made it very hard for the doctors to know what was going on and I refused to let them perform surgery unless they know where to look. I had a consult with a GI while I was in the hospital but he wasn't an expert in IBD and I could get an appointment with an expert for months. My primary kept harassing the GI to do something. 6 weeks after the bowel obstruction and 2 emergency hospitalizations numerous CT scan the inability to eat or work or really being able to do anything the GI orders and IME. the following day I had surgery

I'm sure I had the disease for more than a decade. I was inflamed in all my joints. I'm sure the inflammation, lack nutrient absorption that immune supporting drugs is way cancer developed.

You can not tell someone your sick if you don't recognize that your sick

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Replies to "The really strange thing about my autoimmune disease, Crohn's, it was silent. I had no stomach..."

Hi. You have been through so much. I understand and can relate. Hang in there with me. I’ll be as supportive as I can. I will listen and respond when you need me.