Connect
Discussion
Comment receiving replies
Replies to "I totally agree with the above, two weeks is nothing and 10 mg is not an..."
Polymyalgia Rheumatica (PMR) | Last Active: Feb 27 9:47am | Replies (17)
Comment receiving replies
I totally agree with the above, two weeks is nothing and 10 mg is not an accurate starting dose. Maybe the diagnosis is incorrect, but certainly the treatment is not correct. I can guarantee you. I would definitely seek out a second opinion most people have PMR for at last one to two years and much higher dose to start to really control the symptoms. I was diagnosed when I was 54. I’m now 66 and have juststarted KevZara. And I’ve been on 20 mg of prednisone for years tried to taper. The lowest I’ve ever gotten is 15 mg and now with the Kev Zara I’m trying to taper again been on KevZara for two months and a 17.5 mg and will only taper 1 mg at a time. Tapering faster than that can be very dangerous.
Replies to "I totally agree with the above, two weeks is nothing and 10 mg is not an..."
Connect
I have a lot rolled into this comment so bear with me.
I started at 50 mg 5 months ago and have gotten to 20 and it was/is difficult. Im beginning Kevzara and am tapering on 17.5 Prednisone.
My Rheum Dr is young and seems new to PMR so I’m struggling making sense of PMR, tapering and what is the “endgame”. I’m curious why you say tapering too fast is dangerous? Is it bad to “endure” the pain/symptoms to get through the level I’m at? I’m unsure what is too much or worthy of telling my Dr. What permanent issues can occur?
Im also having difficulty figuring out all the side effects of Prednisone and Kevzara. The weird body aches, sleep issues and moods are hard too. What do I tell my Dr?
Anyway any advice is appreciated