You are definitely not alone. My husband had a distal pancreatomy in July 2024. They removed the Body and Tail of the Pancreas along with his Spleen. Many serious complications that set him back by several months. He lost over 50 lbs and was not eating much at all. Some days he would want something and I ran out to the store and brought it back only for him to tell me he did not want it. Other times, he would eat something and tell me it was really good so I would go ahead and make more and he would tell me he could not eat. Oncologist suggested CBD oil to help his appetite. I talked to a friend who had gone thru something like this with his Aunt and he suggested RSO Capsules. ( Rick Simpson Oil ) I did some research and was able to get them. They have been a Game Changer. He has gained 30 lbs back but if he does not take them,
he has no appetite at all.
I am at University of Penn today with him. They are doing a Lung Biopsy because he has nodules on his lungs and one has continued to grow. He also has a lot of pain in his right side, abdomen and stomach so after we get the results from the lung biopsy, they will do another PET scan to check his Liver,
It truly is a Journey that we are all on. My Husband and I will be married 50 Years in July and have 3 Wonderful sons and their Families who are always there when we need them. Going thru all of this together has made us even closer and love each other even more than we ever thought possible. We are trying to enjoy every day that we are together.