Best of luck!

Yes but you will find as years go on the patronizing of we understand your pain, when they’re sitting there telling you about their ski trip next, or how they went roller blading… and your barely able to get up & down from the chair & you’re the youngest sibling by many years. When your 76 year old mother runs circles around you on a daily basis and says i understand you don’t feel well, i understand your 30 something pills a day make you sick & tired. And in the next breath say oh you’re lazy you never want to go out shopping. No…no I don’t. I’m tired, I feel shit on a good day, I don’t like to be around a lot of ppl anymore…to many germs.

@elainemel You have the correct approach with communicating with family and friends with printing out info so that "family and friends can understand what I am going through."

I am battling psoriatic arhtritis and I have described my related symptoms in Word, both major and minor. I have over a dozen. I print it out and hand it to them to read and than have a discussion on what I am going through. This is a sample of what I wrote for a couple symptoms:

FATIGUE and STIFFNESS: Stress of any form (physical, mental, emotional) can bring on fatigue and cause stiffness in the back and legs. It has been difficult to walk in a large store, like Costco. Mental/emotional stress will cause fatigue/stiffness the next day.

JOINT PAIN: Various joints have sharp pain that usually come for a short period of time and go away. If the pain remains, icing calms it. The pain is usually in a wrist, an ankle/tendon, knee and may be on either side.