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CIDP new approach

Autoimmune Diseases | Last Active: 5 days ago | Replies (20)

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Profile picture for margydolan @margydolan

My husband has been diagnosed since 2014. For 10 year IVIG worked great but now he's had a terrible flare up (?) and is wheelchair bound and his hands no longer work. He start Rituximab in Nov/Dec and gets it every three months. It is not yet showing signs of working but docs (at Northwestern and Mayo) say to have more patience, and their hope is that it break through and he will have some improvement. Our lives have been completely turned upside down. My husband has just retired and has been in hospital, rehab and assisted living since Oct. 2024. We head to Mayo in Rochester March 3 for more tests and advice. I'm so encouragaed the Ritux is working for you!! How long did it take for you to see results. Many thanks for your post. Hoping and praying for you!

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Replies to "My husband has been diagnosed since 2014. For 10 year IVIG worked great but now he's..."

@margydolan Hi Mary, how is your husband now. Do you live in the Chicago area?