Does anyone know where you can get med botox treatment for neuropathy?

Posted by botox61 @botox61, Feb 14 12:35pm

I have been searching both online and calling offices of neurologist and have not found anything. I live in AZ/UT. Could anyone please let me know, if there is a doctors office in either one of the states that can help with this?

Interested in more discussions like this? Go to the Neuropathy Support Group.

John, Volunteer Mentor | @johnbishop | Feb 14 1:16pm

Welcome @botox61, There are a few discussions on the treatment but not sure if any of the members are in Arizona or Utah. Here's a search link for the discussions and comments made by members - https://connect.mayoclinic.org/search/discussions/?search=botox%20for%20neuropathy

I also found a couple of references on the treatment if you haven't already seen them.
-- Effectiveness of Botulinum Toxin in the Treatment of Neuropathic Pain: A Literature Review
https://pmc.ncbi.nlm.nih.gov/articles/PMC10637322/
-- Nerve Pain Therapy: Botox May Treat Peripheral Neuropathy in Cancer Patients
https://www.foundationforpn.org/nerve-pain-therapy-botox-may-treat-peripheral-neuropathy-in-cancer-patients/
Can you share a little more about your neuropathy diagnosis and symptoms?

artemis1886 | @artemis1886 | Feb 24 8:31pm

Pain management doctor
Neuromuscular neurologist

projfan | @projfan | Feb 25 10:11am

In reply to @johnbishop "Welcome @botox61, There are a few discussions on the treatment but not sure if any of..." + (show)

This is a really interesting idea. I do botox now for migraine prevention, although digging around in the literature more broadly, treatment for various other conditions may be quite different. For migraines, it's multiple pricks around the forehead, temples, and back of the neck, while for knee arthritis, it's a single, deeper injection. I'm guessing targeting the foot would be more like migraine treatment, while targeting polyneuropathy with a spinal injection would be more like arthritis? I have to say that I would be more willing to just take a chance on local injections in the feet than I would on a spinal injection, which seems intuitively riskier.

The literature review says "However, further research is required to determine optimal dosing, treatment protocols, and the long-term effects of BTX-A in the management of neuralgia." That makes sense, of course.

So: how does one know whether any given medical professional actually has a clue how to get good results from what amounts to a promising, relatively new, off-label, use of the product? Any suggestions other than interviewing the person about their experience? I'm particularly concerned about the basic question of where to stick the needles, although optimal dosing is also a good issue to explore.