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Invisible illness how do you cope?

Autoimmune Diseases | Last Active: 6 days ago | Replies (30)
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@artemis1886

Here is a list of labs to have run by a rheumatologist.
See a neuromuscular neurologist.
Have a emg / nerve conduction test
Biopsy for small fiber neuropathy.
I started keeping track of my symptoms and taking pictures.
I had a gland biopsy done by an ENT. Then went to an eye doctor diagnosed with Sjogrens and Lupus on top of my autoimmune neuropathy.It took over 7 years to get this diagnoses. I went to Boston to see a neuromuscular neurologist and she caught the Sjogrens then from there it’s was one of two things Lupus or RA. I took pictures of my face with the butterfly rash. All my autoimmune markers were high.

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Replies to "Here is a list of labs to have run by a rheumatologist. See a neuromuscular neurologist...."
char8972 | @char8972 | 6 days ago

I was diagnosed with Sjorgens 15 yrs ago. I was diagnosed with St 4 Lymphoma 5 yrs ago. After 2 yrs of chemo and immunotherapy I have been in remission for 3 yrs now. My son is a Dr of Internal Medicine. He told me there is now a proven medical connection between Sjorgens and Lymphoma. When he diagnoses Sjorgens he runs a cancer panel. This isn't to alarm you by any means. It's something you might want to talk to your Dr about❣️

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