Hemangiomas or Lesion on Liver
Not sure if I’m in the right group. Has anyone been diagnosed with a hemangioma or lesion of the liver. Mine hasn’t changed in years. I’m wondering what can be done regarding it if anything? Is it to be of a concern? Thank you.
Interested in more discussions like this? Go to the Digestive Health Support Group.
Hi, you’re welcome. Thank you for suggestions. I believe doctors don’t care for the open MRI’s. Supposedly, the image isn’t too clear. Plus, the amount of time is probably the same. I don’t care to be in that environment. I hope you will find answers to your issue. Oh yes, quality of life is important. Mine has gone down ever since the pandemic. I didn’t get Covid at that time. But I was extremely afraid of going out. I’ve isolated myself. My husband and I had Covid last December and survived. Take care.
I have 2 hemangiomas on my liver. They were discovered during a CT scan and then verified by an MRI six years ago. The one has been identified by Mayo Rochester as “ginormous” as it’s 11cm x 9cm x 9cm. I was getting medical care as I was very sick. Mayo hematologist told me it wasn’t the problem and just get it looked at yearly. (I eventually got diagnosed with Crohns). So, I saw a hematologist yearly for a couple of years with no changes. At that time I was instructed to have my GI doctor monitor it through my labs that are drawn before my Crohns infusions every four weeks. I have never been given a CT scan or MRI to get a visual. Not sure I like that but it is what it is. While I was in the process of getting a Crohns diagnosis after having numerous tests by Mayo to figure out what was wrong, I had lots of anxiety as in my opinion Mayo Rochester is the place to find answers. When they couldn’t figure out my problem they threw up their hands and said it was my mental health that was causing my symptoms. A few months after, I finally got a diagnosis at a different clinic that was not Mayo affiliated so go figure. To sum it up, my liver labs have been good so I suppose if they weren’t, I would then get an MRI.
Hope you are doing better,
Thanks for your reply. Do you think that your hemangiomas have anything to do with your symptoms? I am having some weird "poking" pain or sensations right around my last rib on the right side. It's very strange. I suffer from health anxiety so I do realize some of this can be psychosomatic for me but definitely feeling something in there! It's mostly mild or just a discomfort, not a doubling over type of pain but still disturbing. I am trying to get an appt with a liver specialist in my area to look at my scan and see if I need monitoring for growth, or what .. It's unsettling that I have eight of these things in there and don't know how I got them, or if they are growing or will continue to grow or what?? I am glad to hear that yours have had no change in size. That gives me hope. Would love to hear from someone who has had them and they actually shrunk. That would be fantastic news to hear right about now. Hope you are doing well and your Crohns is under control these days. Wishing you good health. 🙂