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What helps longhaulers dealing with Chronic Fatigue?

Post-COVID Recovery & COVID-19 | Last Active: 4 days ago | Replies (36)
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@rissanz

Thanks! That's great to hear. When I'm well I'm about 40% capacity now. I had a bit of relapse as I changed LDN from capsule to liquid. It seems liquid doesn't work for me.

Anyways, I'll stabilise on LDN capsule and ask my GP for new prescription. Would you know any research publication that talks about this protocol?

Are you taking any other medication or doing any treatment for fatigue or PEM?

Thank you!

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Replies to "Thanks! That's great to hear. When I'm well I'm about 40% capacity now. I had a..."
carlosmayo | @carlosmayo | Feb 24 9:58pm

Hi. I dont know about research on Abilify. Maybe the Stanford clinic website has something ...
You bring up something I have been wondering about - the efficacy of the liquid LDN compared to capsules. How do you know the liquid does not work as well for you? I used to use capsules, but now dissolve a 50mg tablet in 50ml water and take 3ml solution with an oral syringe ... saves over $800 a year in compounded pharmacy bills but I have wondered if it works as well.

Other treatments. When I got worse again I started taking colchicine (0.6mg/d) and plaquinil (300 mg/d). Both have helped some with fatigue and headaches, not as dramatic as LDN or Abilify, but still helpful. Both from the Stanford clinic.

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