Who prescribes ADT?

Posted by TM91 @tmestanas91, Feb 23 3:47pm

I’m working with Cleveland clinic and went to Mayo Jax last week to start the 2nd opinion process. I’m working on getting all my scans to Mayo. In the meantime I met with the surgeon at CC. He recommended ADT and then surgery. That’s all I have so far. I’m meeting the CC oncologist on Tues and their radiation oncologist on 3/7th. I’m wondering who will get me started on treatment. I’m 61, gleason9, clean scans( mri, bone, PSMA). Once I get feedback from Mayo I can decide on next step. I’m leaning towards surgery since surgeon felt he could get good margins. I’m very fit and exercise daily. Walked 5 miles today, gym several sessions per week, lots of golf very active. Thank you for your insights. You all have been fantastic!

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TM91 | @tmestanas91 | Feb 24 11:13am

@jerryegge do you did ADT then surgery ? How long before surgery? I’m hitting the gym to stay strong. Thank you for your input.

gently | @gently | Feb 24 11:45am

Surgeons have told me that 2 months is the standard before surgery.

TM91 | @tmestanas91 | Feb 24 11:58am

@jerryegge nit sure my reply went through. How long did you do adt before surgery?

TM91 | @tmestanas91 | Feb 24 11:58am

In reply to @tmestanas91 "@jerryegge nit sure my reply went through. How long did you do adt before surgery?" + (show)

Ok thx. See that now .. 👍💪

Jerry | @jerryegge | Feb 24 2:47pm

In reply to @tmestanas91 "@jerryegge nit sure my reply went through. How long did you do adt before surgery?" + (show)

I got your reply. Thanks. I never got ADT, just surgery.

kujhawk1978 | @kujhawk1978 | Feb 24 4:14pm

Short answer, any member of your medical team. My urologist prescribed Lupron, my radiation oncologist prescribed Orgovyx, my oncologist prescribed Xtandi and Taxotere.

Kevin

jeffMar | @jeffmarc | Feb 24 5:28pm

In reply to @jerryegge "Sounds like you’re in good physical shape. If you decide to get ADT you may loose..." + (show)

Do a lot of Sit ups and it can offset the muscle loss you will get in your stomach that will give you a belly.

TM91 | @tmestanas91 | Feb 24 6:52pm

Got it! 👍

heavyphil | @heavyphil | Feb 25 7:21am

In reply to @tmestanas91 "They keep telling me with Gleason 9 the decipher won’t matter.. I’ll push back @jc76 ...." + (show)

TM91, I agree that a Decipher test is a good idea…but I also wonder if there is anything called “non aggressive Gleason 9” based on a Decipher score.
You have a very aggressive cancer to begin with - a low Decipher score doesn’t mean much. In fact, I’d be willing to bet that there’s no such animal as a Gleason 9 with a LOW chance for metastasis.
Not disputing the value of a Decipher but it’s a real game changer in Intermediate Grade 7, in which 3+4’s and 4+3’s may or may not need ADT depending on the Decipher.
You, unfortunately, are two grades above that and ADT is a necessity IMO.