Replies to I have a paget's disease of the vulva and had to have surgery No diapers involved….

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Gynecologic Cancers | Last Active: 1 day ago | Replies (140)

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@susanpagets

I have a paget's disease of the vulva and had to have surgery
No diapers involved. I don't know what that could be. And no this is not our fault. I am now using Imiquimod and feeling tired but hopeful to not have to have surgery again right now. And, every day is a new normal

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Replies to "I have a paget's disease of the vulva and had to have surgery No diapers involved...."

andwho | @andwho | Feb 24 5:38pm

I was diagnosed with vulvar cancer stage 1b in may 2023.
I’ve been cancer free since but have suffered with a lot of soreness, tendeness. I now have a lot of itchiness & Inflammation. I saw my oncologist 2 weeks ago. She suggested vulvar cream but that is not helping. What is going on! Is this just another Side effect? Maybe pagers???

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