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Chronic Kidney Disease of Unknown origin

Kidney & Bladder | Last Active: 17 hours ago | Replies (12)

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@ralfie

Hi Ginger, your message help me solidify that a biopsy maybe the next best step. I want rule out possibilities. I have full blood work and a urinalysis coming up in about 3 weeks followed by a neurologist appointment. I will see what he says this time and if he doesn't bring up a biopsy. I will and try to push him to request it. If he won’t, I’ll ask why and then weigh it out with my pcp/cardiologist and pursue
a new nephrologist referral.

Re medications that i take, he didn't feel any were linked, but its the combination interactions that are unknown. I joined a facebook ckd group and many people from other countries keep asking about how many covid 19 vaccines i had and which brand. They tell me in their countries the research is starting to support a link to ckd. Even if thats the case, how is it proved is my question.

Thanks for providing your comments. It helps! I also hope your journey is going well.

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Replies to "Hi Ginger, your message help me solidify that a biopsy maybe the next best step. I..."

@ralfie Going out on a limb here. While there have been people who look to vaccines, and specifically COVID, as starting or creating various health conditions, I see it from a different angle. A vaccine of any type creates an immune response in our system. Our bodies remain a mystery in many aspects, even after all this time and research. Receiving any vaccine is simply triggering our individual immune response, and that response may vary among different individuals, given our unique health status.

When we have lessening kidney function, it is standard protocol to track down and treat the underlying cause in order to mitigate the decline, and also treat the decline as much as possible. If you have not yet, perhaps speaking with your pharmacist to review your medications, both over-the-counter and prescribed, to make sure there are not unwanted interactions, will be a good step. Rule out whatever you can to figure out the decrease in function. A complete set of blood work, perhaps even a thorough physical exam. We have to advocate for ourselves a lot of the time.
Ginger

I would love to know as much information as possible about the post studies with the Covid 19 vaccine and CKD decline. I am trying to research this myself as my eGFR began to decline significantly after I received the vaccine and two boosters. My immune function was through the roof and I was also diagnosed with lupus (not Lupus nephritis). Even though I am a type 2 diabetic my eGFR was between 50-60 until after the vaccine. It took a dive then went back up, but not to what it was pre-vaccine. I hear there are some studies going on at Yale. I would love to join any study.