← Return to High anxiety regarding Reclast or Prolia decison for OP meds

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@gently

lhankins,
have you considered Forteo. Tymlos is four times as much medication as Forteo and Forteo has a lesser impact on calcium levels.
A few small studies indicate that Prolia is usually safe for 5 to 7 years. You may have a good experience with Prolia and may be able to take it for life without fracturing. The statistical risk of atypical femur fracture and osteonecrosis are quite low. Flu-like symptoms after infusion are more common. The often unreported, devastating effects are usually in the elderly.
Damage for the relatively few is so extreme that I hold a negative opinion of the medication.
It may be (sounds as if) the rheumatologist is uncomfortable requesting a slower infusion from the nursing staff.
Dilution of the medication for a slower infusion protects your kidney's in addition to making your response to the medication more comfortable. "Other problems," I mark with a question mark the way you have. If you increase the hydration and don't increase the time of infusion that would cause other problems.
I'd prefer that you'd have a lower dose of Reclast initially with a longer infusion.
You might ask the physician if they can refer you to a different infusion center. You might call the infusion center and ask if they could accomodate a longer infusion and then recontact the physician.
We need better choices. I hope your choice brings you the best luck.

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Replies to "lhankins, have you considered Forteo. Tymlos is four times as much medication as Forteo and Forteo..."

@gently
My doctor won’t prescribe Forteo for me because he says it is best for osteoporosis in the hips where mine is mainly in my spine. He stated that Tymlos was more appropriate for spine. The only option he has offered me is Prolia or Reclast and he thinks Prolia until end of life would be best for me. He will also administer the infusions only as suggested by the manufacturer; in fact, he would not let me continue on Tymlos on a lower dose because he stated there is no data to support the lower dose. However; I have read on this site patients who have had great results with the lower dosage. I have an appointment scheduled with a highly recommended endocrinologist; unfortunately it is not until January 2026. I’m getting the definite impression the endocrinologists are the way to go. My rheumatologist does not use the CTX or P1NP tools to evaluate osteoporosis once on medications either. He does not think that they are necessary but did admit endocrinologists commonly use these tools. Right now I am hoping I can hang on until January but worried I’m going to lose more ground. I have a brand new Tymlos pen in my fridge ($2800) and told not to use it. I wish I could give it to someone here that needs it.