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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 1 hour ago | Replies (6269)Comment receiving replies
Welcome @lakelariet, The Foundation for Peripheral Neuropathy has a pretty comprehensive collection of neuropathy treatments including the traditional drugs, complementary and alternative along with a list of supplements which have shown to help with neuropathy for some folks - https://www.foundationforpn.org/therapies/.
You might also find it helpful to scan through the list of discussions in the Neuropathy Support Group. Here's a link to the list of discussions - https://connect.mayoclinic.org/group/neuropathy/.
I did a search of the discussions using "neuropathy what helps" if you want to look through these specific discussions - https://connect.mayoclinic.org/search/discussions/?search=neuropathy%20what%20helps.
I'm soon to be 82 and I think it really helps each of us to learn as much as we can about the neuropathy condition and what treatments are available. I've always been labelled as pre-diabetic and do think it has played a part in my neuropathy even though my diagnosis is idiopathic small fiber peripheral neuropathy.
Do you mind sharing your symptoms that bother you the most?
Replies to "Welcome @lakelariet, The Foundation for Peripheral Neuropathy has a pretty comprehensive collection of neuropathy treatments including..."
It seems that a lot of you are taking gabapentin. Have you been to a pain management clinic?. I take lyrica which is pregabalin. Dr. Said he starts new patients on 900 mg a day. This proved too much for me. I take 200 mg during the day and 300 ng. At night. I am a 76 yr. Old woman who weighs about 180. This dose keeps the night pins and needles out of my feet ankles and calves. I know a lot of people have tried lyrica and didn't like the side effects but I kind of knew that they would be my last hope after not getting any help on gabapentin. I think my advice is to give lyrica a try and see if you can tolerate. I can function fine play a mean game if scrabble and do some household chores so perhaps my expectations were low to begin with but I think there again everyone is different in what they consider functioning. Good luck and I continue to follow posts to hear what gas and hasn't worked. I don't know are any research dollars going into this problem?
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My neuropathy started with my feet feeling as tho they were in shoes or had cardboard on the soles. It has progressed to the point where the big toe on left toe is excruciating and numbness is up to knee in that leg.