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Chronic Kidney Disease of Unknown origin
Kidney & Bladder | Last Active: 17 hours ago | Replies (12)Comment receiving replies
@ralfie Let me echo the welcome to Mayo Clinic Connect. Remember, it's okay to vent here!
While high blood pressure and diabetes are often recognized as the leading causes of chronic kidney disease, there can be other factors involved in drops in kidney function. Medication side effects, genetics, and more can play a role. I myself was experiencing the same thing. There was nothing to point out why, so they did a kidney biopsy. The diagnosis was a very rare chromosomal abnormality, where a fibrous collagen is clogging my kidneys' filters.
I hope your medical team will continue to pursue the root cause of your concern, so you can get it addressed.
Ginger
Replies to "@ralfie Let me echo the welcome to Mayo Clinic Connect. Remember, it's okay to vent here!..."
A drop in kidney function absolutely can be caused by factors other than diabetes and high blood pressure.
Drop in my kidney function was due to sarcoidosis (an autoimmune disease). The decline was over a very long period of time, and I was diagnosed with ckd stage 3b in 2013 after which my kidney function continued to decline.
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Hi Ginger, your message help me solidify that a biopsy maybe the next best step. I want rule out possibilities. I have full blood work and a urinalysis coming up in about 3 weeks followed by a neurologist appointment. I will see what he says this time and if he doesn't bring up a biopsy. I will and try to push him to request it. If he won’t, I’ll ask why and then weigh it out with my pcp/cardiologist and pursue
a new nephrologist referral.
Re medications that i take, he didn't feel any were linked, but its the combination interactions that are unknown. I joined a facebook ckd group and many people from other countries keep asking about how many covid 19 vaccines i had and which brand. They tell me in their countries the research is starting to support a link to ckd. Even if thats the case, how is it proved is my question.
Thanks for providing your comments. It helps! I also hope your journey is going well.