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Pheochromocytoma: Anyone being treated for an adrenal mass?

Diabetes & Endocrine System | Last Active: Mar 31 8:18pm | Replies (105)
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@moritzm

My endocrinologist says I have Primary Aldosterone even though my renin level is over 1 @ 1.6.
Pheocrhomacytoma is not suspected and abdominal scans have not shown tumors. I'm being treated with BP meds, but my BP is still all over the map and can go over 200 which has put me in the ER 8 times in 3 months. I'm 78, in good health otherwise, good results on all kinds of cardiology tests. Should I be considering surgery. The endocrinologist is very clearly opposed.
Any help will be much appreciated.

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Teresa, Volunteer Mentor | @hopeful33250 | Feb 25 3:15pm

Hello @moritzm and welcome to this discussion on Mayo Connect. I can see that you have some concerns about the proposed treatment. Have you considered getting a second opinion?

If you can be seen at a Mayo Clinic facility, here is a link with information about obtaining an appointment, http://mayocl.in/1mtmR63 at any of Mayo's three locations. If an appointment at Mayo is not possible I would encourage you to get a consultation at a university medical center. These health care facilities are research-oriented and can provide good answers for complicated medical issues.

It is important to put your mind at ease regarding the best treatment plan. Will you post again and let me know how you are doing?

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