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Support for caregivers

Pancreatic Cancer | Last Active: 2 days ago | Replies (17)

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@sheridanb

With my husband it seemed his tastes changed all the time. What tasted "ok" one day could not be tolerated the next. For a while jello was something he liked. I made more jello that first month or two than I had in our 45+ years together.
I agree that the creon helps and he can at least get some benefit from what he does eat.
He looked forward to ham and augratin potatoes for Thanksgiving... but, did not eat any of the left overs. It really is a juggling act trying to get him to eat.
I leave a little bucket with fruit and protein drinks by the couch that he munches on each morning so at least I feel he is starting off with something in his stomach. But after that I think he eats to appease me... really isn't very interested in food. His doctor put him on mirtazapine to stimulate appetite and I think that helped. Also marijuana gummies helped with nausea and appetite.
My husband has regained the weight he lost, but I"m not sure if it is because of the things I mentioned, or that the gem/abrax drugs that he is currently on don't cause all the puking that the folfirinox did. Unfortunately his CA19-9 numbers are slowly increasing so I'm not sure what regimen will be introduced next... and what changes that will bring.
Good luck. You are not alone in this journey.

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Replies to "With my husband it seemed his tastes changed all the time. What tasted "ok" one day..."

I can relate. Every time I think I found something my husband can taste or take a small bite , it goes out the window. He gets frustrated and angry and asked to be left alone. He reminds me that he is trying and do want to eat , but I don’t understand. It breaks my heart hearing him saying these words because I know he feels like he is alone. I try not to cry in front of him, but sometimes it cannot be helped .
My prayers goes to all of us that are in this same journey.