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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 hour ago | Replies (6269)

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@lakelariet

I am 84 years old and have had neuropathy for many years before I knew what it was. I have borderline type 2 diabetes which did not cause the neuropathy burttmay have worsened it. Has anyone found anything that helps?
There is no doctor that specializes in this in my area. The only thing my doctors have offered is gabapentin or pregabilin; I take 900mg gabapentin & it is not keeping the pain under control.

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Replies to "I am 84 years old and have had neuropathy for many years before I knew what..."

Welcome @lakelariet, The Foundation for Peripheral Neuropathy has a pretty comprehensive collection of neuropathy treatments including the traditional drugs, complementary and alternative along with a list of supplements which have shown to help with neuropathy for some folks - https://www.foundationforpn.org/therapies/.

You might also find it helpful to scan through the list of discussions in the Neuropathy Support Group. Here's a link to the list of discussions - https://connect.mayoclinic.org/group/neuropathy/.

I did a search of the discussions using "neuropathy what helps" if you want to look through these specific discussions - https://connect.mayoclinic.org/search/discussions/?search=neuropathy%20what%20helps.

I'm soon to be 82 and I think it really helps each of us to learn as much as we can about the neuropathy condition and what treatments are available. I've always been labelled as pre-diabetic and do think it has played a part in my neuropathy even though my diagnosis is idiopathic small fiber peripheral neuropathy.

Do you mind sharing your symptoms that bother you the most?

I take 2400 mg of gabapentin daily and get some relief. Without that high dose, my pain is unbearable, but what else can I do?