Replies to Hi. I share the same experiences. I have severe osteoarthritis requiring surgery and arthritis from my…

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Chronic Pain | Last Active: Mar 1 7:37am | Replies (21)

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@josmio

Hi. I share the same experiences. I have severe osteoarthritis requiring surgery and arthritis from my autoimmune disease. Besides the arthritis I have the neuropathy all over. It’s been nearly 20 years of suffering. I’m on arthritic medication and just started another one. I haven’t worked for nearly 5 years. I actually went into depression because I loved my job and I lost my self worth and identity. My family didn’t understand what I go through with the autoimmune disease and I had to stop talking to them. I just try to take care of myself with the help of my healthcare providers and my daughter. I get support from them and I go online for support groups. I volunteer at the YWCA and I also volunteer for research studies. That’s what I’m able to do for now. It’s difficult because my doctor advised me not to drive and I just didn’t renew my drivers license.
Most of the time I’m at home in bed because of the pain and I get fatigued easily. It’s not much of the life I had but I still enjoy my grandchildren.
I don’t take pain medications. I refuse to lose my kidneys. I have 3 siblings with kidney failure. I just rest and I use hot or cold applications or suffer through it.
I applied for disability but I haven’t received any response yet. It’s been a couple of years already and I’m still waiting.

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Replies to "Hi. I share the same experiences. I have severe osteoarthritis requiring surgery and arthritis from my..."

christine5 | @christine5 | Feb 24 12:01pm

I have osteoarthritis all over my joints. I also have marfan syndrome which makes my tendons very lax. So the stability and my joints is not good. I am facing knee surgery and hip replacement. I too get fatigued very quickly.
I try to do the minimum.I can during my days That i'm Having pain. I do take.
Tylenol and medical marijuana for the pain.
On days that the pain is minimal.I try to do as much as I can without overdoing.

I'm glad you still have fun with your grandchildren.

As far as.
The disability goes.I would call and see if they still even have your file active. You may have to re. Apply.

Make sure.
That you have a note from one or more of your doctors saying that you are 100% disabled.
They are gonna want medical records proving all your illnesses.