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New Diagnosis: husband's labs are all indicating NET
Neuroendocrine Tumors (NETs) | Last Active: Mar 31 5:16am | Replies (49)Comment receiving replies
@jocat74
I wish I could give you an answer to your question about weight gain after surgery, but I'm not a medical professional and my experience was weight loss after surgery. As mentioned, if you feel your current medical team is not addressing this concern, a consultation with a NET specialist might be in your best interest.
@colleenyoung and I have provided you with the link to inquire about a Mayo Clinic appointment. If for any reason, you cannot be seen at a Mayo facility, here is a link to NET specialists throughout the U. S., https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
Putting your mind at ease would be important now and a second opinion might help accomplish this. Is it possible for you to consider a second opinion?
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I do have an appt with my oncologist this week and I will ask him to refer me to a NET specialist in Milwaukee. It’s a 2 hour drive but I think it’s worth it. There are 2 specialists in Milwaukee and they are the only ones in the state of Wisconsin.