Sebaceous carcinoma

emendez, you have great resources at MD Anderson and University of Texas.
https://emedicine.medscape.com/article/1213781-treatment
Sebaceous carcinoma usually occurs in adults older than 60 years, on the eyelid, head and neck, and trunk. In this Review, we present clinical care recommendations for sebaceous carcinoma, which were developed as a result of an expert panel evaluation of the findings of a systematic review. Key conclusions were drawn and recommendations made for diagnosis, first-line treatment, radiotherapy, and post-treatment care. For diagnosis, we concluded that deep biopsy is often required; furthermore, differential diagnoses that mimic the condition can be excluded with special histological stains. For treatment, the recommended first-line therapy is surgical removal, followed by margin assessment of the peripheral and deep tissue edges; conjunctival mapping biopsies can facilitate surgical planning. Radiotherapy can be considered for cases with nerve or lymph node involvement, and as the primary treatment in patients who are ineligible for surgery. Post-treatment clinical examination should occur every 6 months for at least 3 years. No specific systemic therapies for advanced disease can be recommended, but targeted therapies and immunotherapies are being developed.https://www.mdanderson.org/cancer-types/skin-cancer.html

@emendez, I agree with @gently. You have some great cancer centers in Texas, most notably MD Anderson. If you wish to get a second opinion from Mayo Clinic experts in Arizona, here is how to get started. http://mayocl.in/1mtmR63

I'm also tagging other members who have experience with sebaceous carcinoma like @stanleykent @maribeltorres815 @dreams

I'm glad that you are able to get access to specialized care for your mom. When will she be moving to be with you? How is she doing with this news?

Thank you for the additional information and tagging people who have gone through it @colleenyoung.

My mother in law arrived on Tuesday. We were able to go to JSP and start the process for insurance coverage, which they automatically approved and gave her coverage for the next 30 days. They were able to do a quick exam and prescribed her medication for her eye to give her some comfort. She is scheduled to go in on Thursday of this week for further evaluation.

She has been dealing with the news pretty well. Just trying to keep her head up high and moving forward.

Emendez
In 2023 I developed a small pea size spot on my shoulder. It was removed and tested and found to be sebaceous carcinoma. A couple weeks later I had MOHS surgery and they removed more of the surrounding tissue. Since then, I have had follow up visits with the Dermatologist and everything has been fine.
Sebaceous carcinoma can be linked to a genetic condition and I had gene testing and was found negative for that particular gene defect.
I have not seen much mentioned in Mayo Connect on this subject as it is pretty rare.
My diagnosis and surgery was at Mayo in Minnesota.
Sure hope your mother in law's care goes well. Let us know.
Thanks

I had a sebaceous cell carcinoma on my nose. The only symptom I had was occasional bleeding from what appeared to be just a pore on my nose. I mentioned it to my dermatology surgeon (I was seeing her for another procedure). She stopped what she was doing and said, "Things aren't supposed to bleed for no reason." She did a biopsy and it came back as an early sebaceous cell carcinoma. She did a Mohs procedure and said that we were lucky that we caught it early, as those cancers tend to grow deep and fast. Usually they require extensive surgery to remove it all. She also removed another growth on my nose that had early signs of becoming another sebaceous cell carcinoma. I have watched it carefully and have had no recurrence (I've had other cancers removed since then, but not any sebaceous cell carcinomas). So remember, if something bleeds for no reason, have it checked out immediately. You might just save your own life.